consent

Archive

Work needed on genomic and genetic data sharing – NDG

Further work is needed to establish how the consent process might appropriately cover data sharing in genetic and genomic medicine,
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Most read Digital Health features and columns, 2016

Digital Health readers wanted to know how trusts had really got on with high-profile deployments in 2016; while communicating with
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Care.data dumped after Caldicott review

The controversial care.data programme has been killed off following the release of Dame Fiona Caldicott's report recommending sweeping changes to
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Joe’s view: of consent to share

As a stroppy teenager, Joe McDonald didn’t think much of his dad’s idea that the Falklands were “there for the
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Birmingham LMC objects to shared record

GP leaders in Birmingham have serious concerns about the region’s Central Care Record project to share patient information across health
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Govt seeks to change NHS Constitution

The government has launched a consultation on changes to the NHS Constitution that effectively spells out how few rights people
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SUS anonymisation described as trivial

Fresh questions have been raised over the anonymity of de-identified patient data provided through the NHS secondary uses service for
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Patchy SCR roll out nears 10 per cent

The NHS in England has created Summary Care Records for 8.5% of the population with the leading region, NHS North
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Swedish National Patient Overview halted

The National Patient Overview in Sweden, which provides an electronic summary of a patient’s record, has been halted following concerns
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