Patient data

Archive

Goldacre recommends Trusted Research Environments become ‘the norm’

A review led by Professor Ben Goldacre into health data has recommended Trusted Research Environments (TREs) become the "norm".
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Citizens do want their health data to be harnessed for innovation

While there is a lack of trust, Dr Layla McCay, argues that citizens are not opposed to having their data
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New information added to NHS Digital’s cyber security campaign

The Keep IT Confidential cyber security awareness campaign from NHS Digital has been updated with new advice and best practice
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National Data Guardian calls for ‘commitment to transparency’

Dr Nicola Byrne said people need to trust they can share their data with confidence without concern their data may
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NHS Digital gives patients easier access to who uses their data

The Data Uses Register, which makes it easier for patients to see which organisations access data, has been launched by
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Rationale of GPDPR is there but trust issues need to be addressed

Digital Health News spoke to Dr Natalie Banner, Understanding Patient Data lead about GPDPR and what needs to happen next.
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Digital Health Unplugged: Unlocking the patient consent puzzle

The latest Digital Health Unplugged is now live – this time debating the topic of patient consent and data sharing
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BMA and RCGP issue joint letter to NHS Digital over GPDPR programme

The pair have issued a joint letter to NHS Digital to express concerns about the General Practice Data for Planning
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Hancock to look at creating ‘consistent cloud platform’ for patient data

Matt Hancock has said he is looking into creating “a consistent data platform” which would see patient data being separated
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NHSX denies conflict of interest over DeepMind founder’s advisory role

Mustafa Suleyman was approached by NHSX to help the organisation explore how best to collect patient data, including the use
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