Patient data

Archive

US passes interoperability rules giving patients more data control

The U.S. Department of Health and Human Services (HHS) has passed two rules that will help patients have more control
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Patient data now viewable across all Welsh health boards

Healthcare professionals in Wales can now access digital patient information across all health board organisational boundaries, NWIS has announced.
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Data strategies must be designed around patient input, report finds

Patients must feel a sense of agency and control over what happens to their data and health data must always
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Patient data sent to global drug companies ‘may not be anonymous’

Patients whose medical information is of particular interest to international companies have already been identified, senior NHS officials claimed.
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NHS ‘risks repeat of care.data in talks to commercialise medical records’

Secretive NHS talks to discuss the potential to commercialise 65 million patients' records risked jeopardising patient trust, Professor Joe McDonald
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NHS staff ‘uncomfortable with tech giants handling patient data’

A survey from Sensyne Health found that just 17% of 1,027 healthcare staff would trust big tech companies to handle
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Eight organisations join UK Health Data Research Alliance

The Alliance aims to make health data more accessible and improve data quality in order to build a more innovative
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National Data Guardian wants more discussion on NHS commercial relationships

The National Data Guardian for Health and Social Care commissioned a poll which looked into public attitudes to NHS organisations
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AI needs quality NHS data to succeed, director of research centre says

Professor Reza Razavi also said patient engagement is vital if we don’t want to “sour the pitch” for other data-driven
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UK Health Data Research Alliance aims to improve patient care

The Alliance will look into the best ways to design, use, collect, manage and analyse health data in a responsible
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